For anyone who’s followed my blog for the last year or so, you have seen our journey and struggle as Dad progressed with Parkinson’s and Lewy Body Dementia. It’s been so hard to watch him suffer, lose weight, become confused, and just turn into the shell of the wonderful man that he was. In spite of everything Lewy stole, it could never take his sweet heart. Even in his last days, his loving personality dimmed, but never went away fully.
Two days ago he took his last breath. No fanfare, no emergency, he just kept sleeping until he did not awaken. His body wore out, and he was so tired. He had made his peace with God and man, and could not keep fighting. For that we are grateful.
I am sad, I am numb. I am glad he has no more agonizing pain. I’m also content that he doesn’t have to muddle through the torment of not knowing his closest loves, of wondering what’s happening to him, and desperately wanting to find someone who can make it stop. Lewy is done. It did enough.
But we lost a wonderful man. And we feel the loss of him.
Dad loved his kids, and adored his grandsons. He loved my mom so much, and he loved me. I count the care I gave him as the greatest blessing I could give to him, and the gift has given me precious memories of Dad’s last months of life.
Dad had dementia, but he never got mean. We thank God for that.
Dad had LBD but he did not get violent. That’s another gift to us, because many do.
Dad thanked us for small services, he sometimes surprised us with humorous “commands”, but overall, he stayed kind.
I just closed down about twenty tabs on my phone about dementia, end of life care, medications and interventions. I will leave the Lewy body support group and stop reading of others with this terrible disease. I need that distance. I needed the info when I needed it. Now, I can’t keep my mind there.
As life goes, two hours after Dad died, I was in the store and ran into a friend. I asked after his wife, who I suspected of Alzheimer’s. No–it is Lewy Body for her too. I have other friends whose dads have this. More and more, it’s a household word.
If anyone you know has a loved one with this disease, the second most common form of dementia after Alzheimer’s, I would recommend the Lewy Body Dementia organization website for help. I would also join a Facebook support group, which was invaluable to me. Hearing others’ stories helps you to know you’re not alone. You can see where you may be headed, and mentally prepare a bit. You can vent and ask questions. The files are super helpful, and there are resources you can learn of.
Dad is gone. His memory is precious. I’ve been sorting photos for a slide show at his memorial. This has helped me to remember fun times I’d forgotten.
People ask me how I’m doing–how Mom’s doing. I can just say don’t ask. I don’t have an answer to that. It changes seven times in one day. Aimless, sad, nothing, tired, numb, and all over the place. We have to navigate new waters while life continues on.
God is with us. Good friends, family, and our faith have and will keep us moving along.
Enjoy the blog hop, and thank you for coming.
It’s cliché, but enjoy every moment with your loved ones. Tomorrow is not guaranteed. Time is short. Just make the most of it.
Welcome to the Sunday Sunshine Blog Hop!
The Sunday Sunshine Blog Hop
This is a place to share some love and spread some sunshine!
The focus of this blog hop will be: anything related to making our homes more sunny and happy! If that’s through homemade cooking, a health tip that will help another, homesteading tips, homeschool successes or real-life struggles, or just whatever God is impressing you with in your home journey, please share it!
Guidelines for the Sunday Sunshine Blog Hop 🌤
- Click on the “Add your Link” Button below and add a great image of your project or recipe. Make sure you link to the page of your family friendly post – not the main page of your blog.
- Link up to three posts each week.
- Try to visit at least a few other blogs at the party. Be sure to leave a comment to let them know you stopped by.
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Features for this week!
You are invited to the Inlinkz link party!
I am taking your advice; I’m making a point to spend as much time as I can with the ones I love. Thank you for the reminders.
Prayers for you all are continuing!
You do that, especially with your parents!
Laurie, I am so sorry for your loss. I will be praying for you, your mom, and your family. May God’s peace surround you even in the midst of the emotional ups and downs.
Yes, I appreciate the reminder
Prayers of comfort <3
I am praying for you and your family, just remember, you will see him again and he will not be sick but he will be forever healed.
I’m humbled by your prayers.
I am so sorry for your loss. You, your dad and family have walked a hard road. My prayers are with you.
Thank you for that.
So sorry for your loss. May family and friends bring you comfort.
Yes, they are a blessing to me.
What a beautiful tribute to your dad and so many wonderful photos that are memory makers. I’m so sorry for your loss but now your dad is pain free and knows you as he watches down from heaven. Alzheimer’s and Dementia are both heartbreaking to watch a loved one go through. Sending hugs and prayers to your family.
So very sorry for your loss…
Thanks so much for hosting this delightful party each and every week!! I really appreciate the time and effort that goes into it especially with all you were dealing with… Thank You!! Stay safe, healthy and happy!!
A nice writing tribute for your dad from you. May he rest in peace. – Danwil Reyes
Thank you so much.
What a beautiful remembrance page. I’ve loved seeing your dad in his high school photo, walking down the aisle with you, and your kids in their cub/boy scout uniforms with your dad. I’m so sorry for the LBD. It’s hard on everyone: the family and the person themselves.
And how blessed you (and he) were that he didn’t become violent. My mom is in middle stages of Alzheimer’s. My poor dad who can barely walk takes care of her and they’re moving into their care home in early Feb. Even though it’s a nice “home” it’s so hard on him to leave his “real” home. I know you already know this, but your dad’s still with you each and every day.
Take care of yourself in the coming year. Grief is a job and can really take it out of you. ♥♥♥
Caregiving is a blessing and a real job. It is exhausting in many ways.
I appreciate you sharing. It is a difficult journey.
What a beautiful tribute to your Dad Laurie! I am so sorry for your loss. My Small Group is praying for you and your family.
Thank you, Joy.
I know those prayers are a lifeline.
Laurie, having watched my dad slowly die over a couple of years, I understand your loss. Take your time to process it and give yourself the freedom to mourn in whatever way your mind and body sees fit. I’m praying for you and your family.
Thank you for understanding. And for your prayers.
Prayers to you and your family.
I’m so sorry for your loss. We will be praying for you and your family!
That means much to me.
So sorry for your loss.
Laurie, I am so so sorry for this journey you’ve been on and for your loss. My late husband was in terrible pain and in process of being diagnosed with dementia, when he passed 18 months ago. I am grateful on his behalf that he no longer suffers. Blessings to you and all your loved ones in this strange time. Thanks for an amazing sharing today.
Thank you for your kind words and for understanding.
Absolutely. Blessings to you.
I am so sorry for your loss. I am glad your father is at peace now and you have an angel in heaven now. Thank you for sharing. It was a heartfelt post. My thoughts are with you and yours. XO- MaryJo
I appreciate that. ❤️
I’m so sorry for your loss! Losing a parent is hard. I’m glad he’s at peace.
I’m very sorry for your loss. Thank you for sharing your memories and thoughts.
Thank you for sharing yours!